We understand that the transition to home tube-feeding requires a certain amount of adjustment, but there are ways to make that adjustment easier. Follow these simple tips to help improve your child's tube-feeding experience.
Mealtime is an important opportunity for socialization and development, and a part of life that children should be involved in and enjoy from an early age. Even though your child is being tube-fed, being included in family mealtime and social events that involve food is just as important for your child as it is for you and your family.
As you gradually become comfortable and experienced with tube feeding, it will likely feel like just another part of life, instead of the center of life. Being able to manage tube-feeds away from home can provide you, your child and your family with the opportunity to have a more flexible schedule. Planning and organization to make sure you have all the equipment and formula your child needs is the key to managing tube-feeds away from home.
Speak with your child's healthcare team for guidance on managing feeds away from home, based on how your child is being tube-fed and their feeding schedule. Your healthcare team will also help you to create a feeding plan for your child if they are attending school.
For more tips and information about skin care, tube care, helpful products, social, travel and school suggestions, including swimming with a tube, dressing more comfortably and dining out, visit Discover Resources.